Today I got a call from the school nurse. She was asking about the monkey and his meds. Which, to bed honest, caught me off guard. She has been my son’s nurse for over 4 years and she isn’t the type to make house calls. Then she asked about his bruises. She said the teacher…
Author: Monkeynism AKA Autism
I'm the mom of a beautiful boy, who happens to have autism.
Acceptance
As our knowledge of autism increases, so does our desire to help and educate others of this phenomena. It’s the yearn of acceptance that we want for our children, brothers, sisters, and anybody close to us that is in the autism spectrum. Many of us have a genuine fear or uncomforted feeling of our loved…
I cannot die.
I cannot die. What will happen to my monkey when I die? If my husband is still around, my monkey will be okay. But he will not be complete. He looks for me when he is scared, he looks for me when he is sad, he looks for me for no reason, other than…
The Definition of Love
This past weekend we had family visit us from out of town. They stayed with us for about 3 days and overall, the monkey did pretty good. Other than one meltdown while we were all out and about, he tolerated our guests. My brother-in-law has a little girl the same age as my monkey. She…
To My Autistic Son On His 10th Birthday (5 Years From Now)
To my autistic son on his 10th birthday, Its December 10th 2016 (5:51 p.m.) and I’m thinking of the next five years of your life. So the intention of this letter is for today to be your 10th birthday. I stop and sigh at the meaning of time and the meaning of this special day….
My Little Gentleman
Days like today are what makes a “papa” like me very proud. Although my son is non-verbal, that has never stopped us from conversing with him. We always talk to him about being respectful, and about caring for others. This is an area that our monkey struggles because he tends to pinch or scratch when…
Just Because.
Last year, I reached out to a fellow special needs mom. She has over 20 years of experience, different type of special needs, but an expert none the less. I poured my heart out to her. She patted me on the back, gave me some tissue, and sent me on my way. I haven’t heard…
It’s Okay.
I don’t remember much the months after we were officially diagnosed. It was just too surreal. I talk about this time often. I remember those months after the diagnosis like it was a dream. Too foggy of a memory. During that time, I would do a lot of research about autism. There is a thing…
A New Male Figure
Lately, our monkey has been surprising us over and over. For example, I was so nervous I couldn’t sleep for days worrying about how he would react to summer school, different school, different teachers, different bus drivers, etc. Our physical therapist tried to calm me down. She told me, “He will surprise you.” And he…
An Open Letter to Our First Pediatric Neurologist
Dear Sir, When we walked into your office, we were tired. We had to go to three pediatricians in order to receive a referral just to see you. The first two pediatricians didn’t think my monkey was struggling. They assumed he was just a typical boy, a little slower than girls, just a little…
Courage.
Yesterday was my monkey’s first dentist appointment. Actually his first one was when he was 6 months old. But I don’t think that one counts. When the dentist asked us why it took us so long to make an appointment, my answer was simple. I didn’t have the courage to bring him here. Courage. Something…
Tomorrow.
Tomorrow, or today in a few hours, we have an appointment with the new pediatric neurologist. I’m so nervous. I can’t sleep. The last time we saw a neurologist for our monkey it was heartbreaking. I don’t think much will be accomplished in this meeting. I mean, how much more can one do? But we…
Monkeynism AKA Autism 