These last few days, we finally started sleeping. The monkey’s on and off again sleeping patterns, waking up at all hours of the night, had been very difficult for us. I couldn’t stay awake during the day. We were all sleep deprived. I was looking at my Fitbit watch, which tracks sleeping hours, and it would read that I’d sleep about an hour and a half each night. Looking at this graph was hard. We knew we weren’t sleeping, but the numbers made us aware of just how much we were all struggling.

The monkey’s pediatrician decided to completely stop his old meds and try new ones. He’s been taking these meds for about 5 years now, without any change in the dosage But when the pediatrician suggested we completely get off of these and use new ones, we were all for it. When you’re this tired and desperate, you just don’t have the energy to overthink anyting.

The first few days we noticed he would go to sleep right away but would wake up at 2 or 3 in the morning. Not as bad as before, but not a permanent solution. We tried a different dosage and now he wakes up around 5 in the morning. This meant he sleeps about 7 hours straight!

So far it’s been about 5 days where we’ve been sleeping better. I realized I haven’t been posting much here, but I think we’ve just been so tired that I just haven’t been functioning much.

It amazes me though, how this kid would sleep so little, and yet he’d be completely fine. He’d be full of energy, and he didn’t appear tired, he’d be just like a typical kid. I cannot imagine the anxiety that he has. So much that it prevents him from sleeping and from being exhausted, and at such a young age. It amazes me how so many of the kids on the spectrum, and adults on the spectrum, are able to just function without much rest. This is just an additional weight they have to carry that many do not see. Just another reason why I think they are so brave. They are asked to fit in a world not suited for them, and yet they still bravely face each day. ❤️

As far as us, we are hoping these new meds will help him sleep more, and help us too.
❤️🙏 We hope. 🙏❤️